“RESPONSIBLE PATIENT”: A CONCEPT OF PERSONAL DIGITAL HEALTH DATA STORAGE and new RF low on “personal ”
February 6th, 2010 by Nikita Shklovskiy-Kordi | Published in Uncategorized
“RESPONSIBLE PATIENT”: A CONCEPT OF PERSONAL DIGITAL HEALTH DATA STORAGE and new RF low on “personal ”
Zingerman B., Shklovskiy-Kordi N.
National Centre for Hematology, Moscow
Shifrin M.
N.N.Burdenko Neurosurgical Institute RAMS, Moscow
Traditionally, medical institutions feel themselves proprietors of the collected medical information. A patient is handed only a brief summary. The main part of the collected data is used only in a single episode of medical aid or during the repeated visits in the same medical institution. Such an approach results in loss of continuity of diagnostic and treatment process and in duplication of examinations. Public opinion accepted idea, that modern information technologies allow collecting and integrating personal health data and providing all the interested participants with access to it. However, the task is very difficult because of multiple formats and absence of standardization. A number of expensive projects are currently developing in many countries targeted at integration of medical data at a national level (no doubt, problems of responsibility, privacy and control of access will grow dramatically due to such projects).
On the contrary, in our approach, the subject (patient or potential patient) himself takes responsibility for the Internet storage of his personal medical data. Certified (qualified) medical specialists are responsible for the contents of the records, which are protected by their electronic signature. Technological maintenance of data input, safety, and confidentiality, policy of providing data access are responsibility of the service provider. During the voluntary registration of the personal storehouse, the user signs a contract with the service provider, where the terms, rules, and the parties’ responsibilities are listed.
This approach allows using the citizen’s right for possession of their health data (RF Healthcare Law). In certain situations, the right of access and updating personal medical information can be delegated to the other individuals or institutions. Compliance with the principles of the National standard of RF « The Electronic Patient Records » will guarantee the proper usage and control of the contents of records and protect the rights of all participants of the process.
