First AMA-IEEE EMBS Medical Technology Conference on Individualized Health Care

Dear all:

First of all, we are almost done with the review process and you will shortly receive a communication about the outcome of the review of your abstract.  Thank you for submitting your contributions!!!

Following Andrea’s posting, let me clarify that the abstract will be published on the conference website in an open-access format but will not be included in IEEE Xplore.  We might reconsider for future editions of this conference and would love to hear from people on the blog about their opinions on this matter.

Cheers,

Paolo Bonato, PhD

Conference Program Chair

Hi to All,

I’d like to know if the submitted and accepted paper will be published as international conference proceedings by the IEEE society.

Best Regards,

Andrea Calisto

• Attitudes and adoption of PHR by physicians and patients
• Behavioral changes and complacence to treatment by using PHRs
• Roll of PHR in sharing of health care data and clinical information exchange
• surveillance systems by monitoring data entered in PHR at the time of disease epidemics
• Incentives for physicians to use PHR for instance pay for performance
• Decision support systems and PHR

Saeed Mehrabi
PhD student in Health Informatics
Indiana University-Purdue University Indianapolis
Email: smehrabi at iupui.edu

Data security consists of 3 components: confidentiality, integrity and availability. We have developed a National Standard of Russian Federation “electronic health records” (entered into force in 2008), which discusses in detail all aspects of data security in the application for medical records.
The interest of the patient consists in the fact that the medical examiner has received much information as possible in the most understandable form (availability).
Patient safety depends on the reliability of preserving the integrity of data, ie, that no one component has not been changed.
People love to talk about privacy, but we never see the critically ill patients who would have thought about confidentiality: they always wanted to maximize participation in their own problems, as doctors, and others.
If you explain to people the difference between truth and credibility, and indicate that the slander and smear company only needs the likelihood you will find very few people willing to pay out of pocket for a higher degree of privacy in their medical records.
Nevertheless, the new Russian Federation law “On personal data” considering only the issue of confidentiality and thus detrimental to the other components of data security, posing a threat to medicine.

“RESPONSIBLE PATIENT”: A CONCEPT OF PERSONAL DIGITAL HEALTH DATA STORAGE and new RF low on “personal ”

Zingerman B., Shklovskiy-Kordi N.

National Centre for Hematology, Moscow

Shifrin M.

N.N.Burdenko Neurosurgical Institute RAMS, Moscow

nikitashk@gmail.com

Traditionally, medical institutions feel themselves proprietors of the collected medical information. A patient is handed only a brief summary. The main part of the collected data is used only in a single episode of medical aid or during the repeated visits in the same medical institution. Such an approach results in loss of continuity of diagnostic and treatment process and in duplication of examinations. Public opinion accepted idea, that modern information technologies allow collecting and integrating personal health data and providing all the interested participants with access to it. However, the task is very difficult because of multiple formats and absence of standardization. A number of expensive projects are currently developing in many countries targeted at integration of medical data at a national level (no doubt, problems of responsibility, privacy and control of access will grow dramatically due to such projects).

On the contrary, in our approach, the subject (patient or potential patient) himself takes responsibility for the Internet storage of his personal medical data. Certified (qualified) medical specialists are responsible for the contents of the records, which are protected by their electronic signature. Technological maintenance of data input, safety, and confidentiality, policy of providing data access are responsibility of the service provider. During the voluntary registration of the personal storehouse, the user signs a contract with the service provider, where the terms, rules, and the parties’ responsibilities are listed.

This approach allows using the citizen’s right for possession of their health data (RF Healthcare Law). In certain situations, the right of access and updating personal medical information can be delegated to the other individuals or institutions. Compliance with the principles of the National standard of RF « The Electronic Patient Records » will guarantee the proper usage and control of the contents of records and protect the rights of all participants of the process.

Not only in the Former Soviet Union persist a strong tradition of paternalistic medicine characterized by lack of patient’s involvement in their health management and delegation of problems to the doctors and social structures.
In order to modernize health care in these countries, it is critical to increase the involvement of patients in their own health care which should be viewed as a personal duty. The project «the Responsible patient» provides medical education to general population. Creation of the National Standard of the Russian Federation «the Electronic case record», which entered in action in 2008, offers a tool for a patient to personally fill in and manage an Internet database on personal health. This concept differs from analogues in that the responsibility for gathering and storing personal medical data is free-of-charge and allows an individual to store their own health record. Technological maintenance of data input, safety and confidentiality of the storage are assigned to the provider of Internet services.
Question: how to involve peoples in management of their personal medical information?

Dear all:

The paper submission deadline is coming soon, i.e. February 12, 2010.  Thank you Vuckovic for bringing this matter to our attention and apologies for not posting your comment before.  You can contact us using the following email address ama-embs@ieee.org or writing directly to me at pbonato@partners.org.   We  have posted this email address on the website, but will make sure that it is a bit more prominent so that you guys can find easily a way to get in touch with us.

Thank you for your interest in this conference.

Paolo Bonato, PhD

Program Chair

It would be great if you would be so kind to clarify what is the deadline for abstract submission? Tomorrow or February 12th? There’s one information on your “Overview” page and another information on all other pages.

May I also suggest that you give some e-mail address as contact, since there’s no contact information of any kind on the web page (well, I did not manage to find it), and writing a post on a blog might not be the way to solve technical problems.

Thank You very much

Telehealth has been an active research area for over a decade. It promises healthcare cost reduction, better health delivery environment for patients, better case outcome, and greater patient participation in their health management. As part of the Connected Health,
Electronic Medical Records & Personal Health Records, and Point of Care Technology themes, it would be helpful to have a session or discussion on Telehealth recent success stories, remaining obstacle for wide spread implementation, and emerging new paradigms in patient care delivery.

Over 50 Million U.S. citizens alone suffer from some form of chronic pain, which doesn’t include those suffering from temporary injuries or strains.  According to the American Chronic Pain Association, “Pain is the most common reason Americans access the health care system… providing adequate pain management is a crucial component of improving and maintaining quality of life for patients.”

Pain management is a $19 Billion global industry of which $1.5B is spent on non-pharmaceutical pain therapy. The industry is currently dominated by drugs that often cause unfortunate side effects or aren’t used by patients for a variety of reasons.  In a 2007 survey by the National Pain Society of 1,484 adults, 72% of respondents admitted to having suffered some form of pain within the last twelve months but were reluctant to use drugs for pain relief.  More than 90% agreed that “people take too many pills these days.”   Medicinal therapies are not adequately meeting market needs and the majority of chronic pain sufferers have turned to pharmaceuticals that currently dominate the treatment options due to widespread insurance coverage and convenience.  However, there are a myriad of public health problems associated with analgesic use including addiction, medical side effects, and illegal drug use.

The purpose of this session is to showcase novel technologies and techniques that provide pain relief from the clinic to the home and reduce health disparities between populations that may not have access to traditional pain-management clinics. Approaches include: wearable devices, telemedicine, massage therapy, homeopathic techniques and other non-pharmaceutical based approaches.